In March of 2016, at the age of 51, I was diagnosed with Younger Onset / Early-Stage Alzheimer’s Disease. You can read my full story here. Since my diagnosis, I have been working with great passion with the National Alzheimer’s Association as a member of the National Early-Stage Advisory Group (retired). I served on the board of directors for the Greater NJ chapter and as an Alzheimer’s Congressional Team member and NJ State Advocacy Champion (retired), and a Patient Advisor for Early Intervention Systems, Inc.
Here is some of the advocacy and awareness work I’ve been doing to help with the fight to #ENDALZ.
2021
- The Alzheimer’s economy: is the new $56,000-a-year drug worth it?
- New Alzheimer’s drug provides hope to South Jersey man
- FDA approves first drug intended to slow cognitive decline caused by Alzheimer’s disease
- CBS Evening News With Norah O’Donnell
- The FDA has approved a new – but controversial – drug that can treat Alzheimer’s.
- Biogen’s FDA Victory Changes the Game for Alzheimer’s Treatment
- Alzheimer’s community awaits FDA vote on Biogen’s Aducanumab
- Is history about to be made in the battle against Alzheimer’s?
- A breakthrough at last? Millions with Alzheimer’s anxiously await FDA decision on new drug.
- Biogen Hopes Alzheimer’s Drug Mired in Controversy Earns FDA Nod
2020
- Alzheimer’s Disease: A Patient Speaks – WCG Patient Forum
- Creative Connections in the Alzheimer’s Disease Community
- Listen: Pfizer’s Covid-19 vaccine data, the FDA’s Alzheimer’s quandary, and how to think like a biostatistician
- Jeffrey Borghoff: Finding Joy & Purpose after an Early-onset Alzheimer’s Diagnosis
- Patients and Partners – The Patient View – Biogen & Eisai Alzheimer’s Trial Participant Jeff Borghoff’s Insights into His Experience in this Trial
- Memory Loss is Not a Part of Normal Aging
- Man With Early-Stage Alzheimer’s Making Face Shields
- Lacey Man With Alzheimer’s 3D-Prints PPE For First Responders
- Ocean County Resident Makes Critical Protective Gear For First Responders While Raising Awareness About Younger Onset Alzheimer’s Disease
- First Patient Receives Biogen’s Alzheimer’s Drug, Aducanumab, in New Trial
- Forget Dementia, Remember the Person
- Lacey Man With Alzheimer’s Works To End Its Stigma
2019
- Drops of Hopes – Frankfurter Allgemeine Zeitung (German)
- Sharing a family meal can help those with dementia connect
- For Alzheimer’s Patient, Hope Renewed Following Biogen Announcement
- Alzheimer’s Research Gives Us More Than One Million Reasons to Hope
- NBR: Biogen revives its experimental Alzheimer’s drug sending the stock to its best one-day gain in 23 years
- Alzheimer’s patients in Biogen trial, jolted by revival of drug, press for access once again
- Jeff Borghoff Speaks At 2019 Bradley Beach Walk to End Alzheimer’s
- Alzheimer’s Association, Greater Maryland Chapter 2019 Baltimore Memory Ball
- The Patient View: Biogen Alzheimer’s Trial Participant Jeff Borghoff at Healthy Returns
- When the ‘real thing’ becomes a mirage: How patients in Alzheimer’s trials are coping with the treatment’s failure
- ‘There Was So Much Hope’: Biogen Trial Participants Are ‘Heartbroken’ After Cancellation
- Doggies for Dementia Press Release
- A Late-Stage Alzheimer’s Trial Gave Them Hope—Until It Was Canceled
- Failed Alzheimer’s trial leaves families and patients heartbroken. Medical community reels
- Doggies for Dementia- Jeff, Kim and Buddy
- Being Patient Perspectives: On Finding Purpose After a Younger-Onset Alzheimer’s Diagnosis
2018
- Jeff Borghoff, “I am the face of Alzheimer’s.”
- 5 Caregivers Share 11 Tips for Looking After Someone With Alzheimer’s
- Passionate World Radio Interview – 8/14/2018
- 2018 Alzheimer’s Association Forum & Capitol Hill Day
- Promoting Wellbeing in the Midst of Alzheimer’s – 2018 Annual South Jersey Dementia Conference
- Should You Stop Working? Guidance for People Living with Early-Stage Dementia by Marie Marley
- 2018 Mary WanderPolo Award – New Jersey State Bar Association
- 2018 Walk Training Summit – Mission Moment
2017
- Bill Gates reveals personal reason he’s helping fight Alzheimer’s disease
- Advisors Excel 2018 World Series of Sales Fundraiser
- Pfizer Ends Funding For Alzheimer’s, Parkinson’s Research
- My Alzheimer’s Story from FALL 2017 Alzheimer’s Association Aspire Magazine
- Alzheimer’s At 51: One Family’s Story Facing The Early Onset Of Alzheimer | Megyn Kelly TODAY
- 2017 Bradley Beach Walk to End Alzheimer’s
- 2017 A.C. Walk to End Alzheimer’s
- 2017 Alzheimer’s Association Leadership Summit Address
- Alzheimer’s Association Region 13 Summit Panel Discussion
- Early-Onset Alzheimer’s Doesn’t Thwart These Advocates
- Today.com Partners in caregiving: 2 generations with Alzheimer’s bond under 1 roof
- Alzheimer’s numbers in NJ, and the stress it puts on caregivers
- The Longest Day 2017
- Turning The NJ State House Purple
- Backfin Media filming for a forthcoming Public Television documentary
- New Alzheimer’s Association Survey Reveals Dramatic Impact of Alzheimer’s Disease on Families
- Alzheimer’s Awareness interview with Dan Loney of Knowledge@Wharton on SiriusXM
- 2017 Alzheimer’s Association Advocacy Forum – Day On The Hill
- 2017 Alzheimer’s Association Advocacy Forum
- FOX 29 Good Day Philadelphia – New Report Shows Shocking Numbers on Alzheimer’s
- Bradley Beach 2016 Walk to End Alzheimer’s Celebration
- Delaware Valley Chapter 2017 Party in Purple
- Alzheimer’s Association 2017 Leadership Summit
- “Another Thing Alzheimer’s Cure” from ”Another Thing with Larry Mendte”
- Alzheimer’s Speaks Radio: Triumphs, Struggles & Passions Living With Dementia
- Dementia Mentors: Being Diagnosed with Younger Onset / Early Stage Alzheimer’s
2016
- Thank You for Loving Me
- Finding Joy During My First Christmas with Alzheimer’s
- Holiday Dinner With Dementia – It’s more difficult, but families manage to find joy
- Men’s Health: 14 Smart Ways to Maintain your Brain
- 2016 Walk to End Alzheimer’s – Bradley Beach, NJ (Promo Video)
- Bradley Beach Walk To End Alzheimer’s
- Alzheimer’s Trial Infusion Day
- PHL17 IN FOCUS with Jennifer Lewis-Hall: Alzheimer’s
- On This Edition of Life Advice with Jennifer Lewis-Hall It’s All About Alzheimer’s Disease
- The financial and emotional toll of America’s Alzheimer’s problem – Yahoo Finance – Nicole Sinclair
- My Walk to End Alzheimer’s
- Hundreds of Advocates Walk to End Alzheimer’s
 SPENT – The Hidden Cost of Dementia |
 Join The Fight |
 The Gift of Clinical Trials |
 Join The Fight |
Get all the facts and figures here.
Effective Communication Strategies to Help
People Living with Alzheimer’s
- Never ARGUE, instead AGREE.
- Never REASON, instead DIVERT.
- Never SHAME, instead DISTRACT.
- Never LECTURE, instead REASSURE.
- Never say “REMEMBER?”, instead REMINISCE.
- Never say “I TOLD YOU”, instead REPEAT/REGROUP.
- Never say “YOU CAN’T”, instead help them do what they can.
- Never COMMAND/DEMAND, instead ASK/MODEL.
- Never CONDESCEND, instead ENCOURAGE/PRAISE.
- Never FORCE, instead REINFORCE.
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