Author Archives: Jeff Borghoff

About Jeff Borghoff

In March of 2016, at the age of 51, I was diagnosed with Younger Onset / Early-Stage Alzheimer’s Disease. Since my diagnosis, I have been working with great passion as an Alzheimer's disease advocate. I served on the board of directors for the Greater NJ chapter and as an Alzheimer’s Congressional Team member and NJ State Advocacy Champion. I am also a Patient Advisor Early Intervention Systems, Inc.

Uneasy About the Future

Today, I am reflecting on my 148th Aducanumab infusion, and the realization that my next infusion will be my last as part of this multiphase clinical trial. This is a bittersweet moment for me, as my family and I believe … Continue reading

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How OpenAI ChatGPT may Help People with Dementia to Write Better

How OpenAI ChatGPT may Help People with Dementia to Write Better As a person living with Alzheimer’s disease, a dementia type, I’ve found that my language skills, vocabulary, and ability to form complete sentences have been impacted. However, with the … Continue reading

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Stepping Away and Stepping Back: My Hiatus from Alzheimer’s Advocacy

Stepping Away and Stepping Back: My Hiatus from Alzheimer’s Advocacy It’s been two years since I last took an active role in Alzheimer’s advocacy. Life has a funny way of testing us, and it certainly did so with a series … Continue reading

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The Benefits of Adult Day Programs for Those with Dementia: A Personal Experience

The Benefits of Adult Day Programs for Those with Dementia: A Personal Experience As a person living with younger onset / early-stage Alzheimer’s disease, I was initially hesitant to attend an adult day program. However, my experience at Town Square … Continue reading

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Participating in the BIOGEN EMBARK Aducanumab and Long-Term Extension Clinical Trial: A Patient’s Journey

Participating in the BIOGEN EMBARK Aducanumab and Long-Term Extension Clinical Trial: A Patient’s Journey As a patient with Alzheimer’s disease, I have been fortunate enough to participate in the BIOGEN EMBARK Aducanumab clinical trial and its long-term extension. In this … Continue reading

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Aducanumab Déjà Vu

On Friday, November 6th, 2020 the Federal Drug Administration (FDA) held an advisory meeting on the approval of Biogen’s Alzheimer’s medication Aducanumab, see Meeting of the Peripheral and Central Nervous System Drugs Advisory Committee Meeting Announcement.  The outcome of the … Continue reading

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2019 Bradley Beach Walk to End Alzheimer’s

2019 Bradley Beach Walk to End Alzheimer’s Promise Garden Ceremony It’s been almost a year since I was up here, I am so honored to be here again. This year has been one of the more challenging since my diagnosis … Continue reading

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Beacon of Hope

I will continue to encourage others to participate in research clinical trials to find a cure for Alzheimer’s whether I continue on to another or not. Continue reading

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2018 Bradley Beach Walk to End Alzheimer’s

2018 Bradley Beach Walk to End Alzheimer’s Promise Garden Ceremony Continue reading

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2018 Atlantic City Walk to End Alzheimer’s

I had the honor to speak at this walk last year. I’m honored today to have been asked to return. A little about me. I’m a husband, father, retired software architect, son, brother, servant leader, friend, neighbor, recreational vegetable gardener, … Continue reading

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