Category Archives: Alzheimer’s
Uneasy About the Future
Today, I am reflecting on my 148th Aducanumab infusion, and the realization that my next infusion will be my last as part of this multiphase clinical trial. This is a bittersweet moment for me, as my family and I believe … Continue reading
Posted in Alzheimer's, BIOGEN, Clinical Trials, ENDALZ, Research
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Stepping Away and Stepping Back: My Hiatus from Alzheimer’s Advocacy
Stepping Away and Stepping Back: My Hiatus from Alzheimer’s Advocacy It’s been two years since I last took an active role in Alzheimer’s advocacy. Life has a funny way of testing us, and it certainly did so with a series … Continue reading
Posted in Advocacy, Alzheimer's, Clinical Trials, ENDALZ, Leadership, Servant Leadership
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Participating in the BIOGEN EMBARK Aducanumab and Long-Term Extension Clinical Trial: A Patient’s Journey
Participating in the BIOGEN EMBARK Aducanumab and Long-Term Extension Clinical Trial: A Patient’s Journey As a patient with Alzheimer’s disease, I have been fortunate enough to participate in the BIOGEN EMBARK Aducanumab clinical trial and its long-term extension. In this … Continue reading
Posted in Alzheimer's, BIOGEN, Clinical Trials, ENDALZ
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Beacon of Hope
I will continue to encourage others to participate in research clinical trials to find a cure for Alzheimer’s whether I continue on to another or not. Continue reading
Posted in Alzheimer's, Clinical Trials, ENDALZ, Research
Tagged Alzheimer's, Clinical Trials, ENDALZ, Research
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2018 Bradley Beach Walk to End Alzheimer’s
2018 Bradley Beach Walk to End Alzheimer’s Promise Garden Ceremony Continue reading
Posted in Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
Tagged Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
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2018 Atlantic City Walk to End Alzheimer’s
I had the honor to speak at this walk last year. I’m honored today to have been asked to return. A little about me. I’m a husband, father, retired software architect, son, brother, servant leader, friend, neighbor, recreational vegetable gardener, … Continue reading
Posted in Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
Tagged Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
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2018 Reason to Hope
Thank you all for the opportunity to speak with you this morning, I’m so pleased to be here. Hope is a feeling of expectation. Faith for a certain thing to happen. We are here this morning to put hope … Continue reading
2018 Advisors Excel WSOS
Thank you for this opportunity to speak with you today. I was diagnosed with younger-onset Alzheimer’s disease in March of 2016 at the age of 51. I went through almost a year of hospital visits, testing and misdiagnoses. During this … Continue reading
2018 Mary WanderPolo Award
On Thursday, April 26 Kim and I traveled to Philadelphia for 2018 20th Annual Elder & Disability Law Retreat where I was honored to receive the New Jersey State Bar Association 2018 Mary WanderPolo Award. This award is presented each … Continue reading
Posted in Advocacy, Alzheimer's, ENDALZ, Leadership, Servant Leadership
Tagged Advocacy, Alzheimer's, ENDALZ, Leadership, Servant Leadership
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With Rep. MacArthur
My dear friend Elizabeth Wolf and I had the pleasure of spending some time on the afternoon April 5th with our NJ 3rd district Congressman Tom MacArthur to discuss our nation’s Alzheimer’s public health crisis. Rep. MacArthur expressed his concern regarding the … Continue reading
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